Myalgic Encephalomyelitis.

The continuing story of a recovery

I want to let you know about a new treatment I have had for my M.E. I had had diagnosed M.E. for 8 and a half years; this was diagnosed by four GPs and two Professors. I was 71 and felt I would be too old to appreciate it if I ever did get better !

I consulted a London Professor. After a few false starts he suggested that I had an URINE test for thyroid function. This test is, at present, only done in Holland.

The results showed very low readings for T3 and T4, though blood tests had never showed anything other than normal and I did not present as a thyroid case (attested to by all the doctors and the professors I had consulted.

I was prescribed Thyroxin and Tertroxin and, here is the amazing part, two hours after the first dose I felt the M.E symptoms roll away! That was at the end of October 2002 and I am still feeling perfectly normal,now18 months later. I had to get my strength back, of course, as I had had to use an electric buggy to get about, but I could soon walk and suffered only aching legs - not complete flop out and blank head.

The relief was extraordinary: I had got my life back. So I want to let the world know that this thyroid test is something worth trying. I am sure that I cannot be the only person to have 'normal‘ thyroid tests when they are not normal at all. T3 is not tested in the normal blood test, it is reckoned to be unnecessary if T4 is normal. T4 has to convert to T3: there can be plenty of T4 but if it's not converting, it's not doing its job.

The test costs about costs under £100, and the lab is;-

You can write to the lab yourself. You need to collect urine over 24 hours. The lab sends a syringe which is filled and sent away. The volume of the urine must be recorded. My instructions said that the sample had to be in their hands within 24 hours but I later found that for this test this was not necessary, though the sample should be as fresh as possible. You might prefer it if your GP took the sample and filled in the form, so you will have to persuade him/her to do the necessary. Thyroid U.K.have a list of sympathetic doctors, if you join them, and have an excellent package when you do join.They are all volunteers and do not give a phone number.

Good luck to all of you, it is well worth a try !

Do please let me know if you follow this up and DO believe me !

Further Info:- It is worth the £5 to get an information package from Thyroid UK, whose address is 32 Darcy Road, St Oysth, Clacton-on-Sea, Essex. CO16 8QF. Their E mail is enquiries@thyroiduk.org
The British Thyroid Foundation have so far to my knowledge not helpful in this regard.

Recommended reading :-

The Great Thyroid Scandal.
Dr.Barry Peatfield.
ISBN 0-9544203-0-6
Published by Barons Down Publishing.